Author Archives: leadertinnitus

A new phase in my life – the journey evolves

Since my last post, I have noticed something very different about my relationship with tinnitus.  I am almost ignoring it now.  I still hear it but I have not been trying to focus on it.  I do not mean I don’t notice when it changes, but it is just there. However, I have noticed it seems to have changed. I think it is responding to my efforts. I am not meditating much as I thought I was going to.  This lack of paying active attention to my tinnitus is almost a polar opposite to my meditation technique in which I meditate on my ringing.  Let me be clear, I am not intentionally ignoring my tinnitus, I am just not paying attention to it.  The difference is subtle but significant.

So what have I been doing lately.

I am still taking supplements.  As I mentioned in my last post, I purchased some vincopetine, but I have only taken it about three times.  I have no specific reason except I just do not feel like it.  Sometimes your body I smarter than you are.  Here is what I am taking (please note that some of my links are affiliate links; however, I have or do take everything I am linked to in this article):

  • 3 g taurine (2g in the morning, 1 g in the evening.).  I am currently taking the Swanson Vitamins Brand. It is available at Amazon.com Swanson Taurine 500 mg 100 Caps.  I take 6 of these capsules per day. I have been taking taurine for about a couple years now and I personally have not noticed any adverse effects.  I have read articles it can be beneficial in many ways including cardiac issues.  Please consult your medical doctor about taking any supplements.  I have alternated amongst brands more out of convenience than because of effectiveness.
  • 2000 iu vitamin D3 in the morning.  I am currently taking a Target brand.
  • 400 mg  chelated magnesium – in the evening.  I used to take just 133 mg to 266 mg but now I take 3 capsules.  This is the Swanson Vitamin brand I take  Swanson Ultra Albion Chelated Magnesium Glycinate Mineral Supplement, 133 mg, 180 Capsules .  It does not upset my stomach at all.  I take it at night or in the evening.
  • 720 mg turmeric along with 10 mg of Bioperine to help with absorption – black pepper in the evening. I started taking turmeric after reading about its potential affect on ion channel effectiveness.  The article I read was about cancer, but I started researching turmeric in regards to its impact on tinnitus which I think it is related to the ion channels in our nervous system.  This is the magnesium I am taking  Swanson Premium Turmeric 720 Mg 240 Caps .  I take 3 capsules per day in the evening.
  • 1200 mg of fish oil which has about 360 mg of Omega-3 fatty acids in the evening.  I take this because I think that fatty acids help in the effectives of our neurons and myelin.  I take a generic product I buy from Aldi.  I also eat flaxseed seeds.  I am very functional so I pour some in my hand and eat them.  Be careful if you do this as you do not want the seeds to go down your windpipe.  You can also eat them in yogurt etc.  They get caught in your teeth sometimes too.
  • Probiotic in the morning.  I take a product called Digestive Advantage.  I am lactose intolerant and this product has been effective for many years for me.  I do not know if it affects my tinnitus, but I am mentioning it here since it is part of my regimen.  This is the product I buy. I have it on auto-order for every three months.  Digestive Advantage Probiotics Lactose Defense Formula Dietary Supplement (32 Capsules Each, Pack of 3)

I have also significantly changed my diet.  Over the past 4 weeks, I have basically stopped eating the following

  • bread, pasta, rice, cakes, potatoes and the like
  • candy and chocolate
  • milk including yoghurt for the most part. I have eaten a spoonful of plain yoghurt a couple times
  • fruit
  • beverages except water. plain tea, black coffee and the occasional glass of red wine. I do drink protein powder Muscle Milk to get additional protein.  We had some in our pantry which is why I started to drink it. Once I use it all up, I may just buy a generic brand, but I have to say I like the flavor of it.  This is what I am currently using  Muscle Milk Genuine Protein Powder, Vanilla Crème, 32g Protein, 4.94 Pound

except on Saturday, on which I allow myself to eat whatever I want.  I have discovered though my desire to eat the above products has diminished tremendously .

So, I eat a lot of protein including eggs, meat, beans, sardines, pork, chicken, and protein powder, vegetables especially spinach, sauerkraut and tomatoes, nuts (I used to eat a lot but cut back), and almond and peanut butter.

I am not doing this for my tinnitus, but I am doing it to lose body fat especially the not so visible body fat.  I am very focused and so I switched my diet pretty fast four weeks ago and have adjusted my eating style as I have gone along over the weeks.  However, you should consult your medical doctor before trying this way of eating.  I am not recommending it to anyone.

I am basing my approach to eating on Tim Ferriss’ Slow Carb Diet.  This is Tim Ferriss’ book The 4 Hour Body: An Uncommon Guide to Rapid Fat Loss, Incredible Sex and Becoming Superhuman which includes the Slow Carb Diet. Again, I am not eating this way to try to cure my tinnitus, but I wanted to mention it as it is impacted what I am choosing to eat and also my weight and body fat percentage.

I am continuing my journey to cure my tinnitus. I feel like I have stepped into a rhythm of taking my supplements consistently. I know my tinnitus is there but I am not trying to measure it although I do pay attention to when it seems to change in pattern.

I will cure my tinnitus.

Please leave a comment and I will do my best to respond.

 

 

Supplements – I may try vincopetine for my tinnitus

I have not posted in about a month.  In the past month, I ran out of taurine and so I went for about a week or so without taking taurine.  I did not notice much change in the ringing.  I also have run out of lecithin.

I decided to reorder more taurine and this time I went back to the Swanson Vitamin brand.  I have taken this brand before so I decided to take it again with the higher dose of about 3 grams per day.

I also continue to take turmeric with black pepper and I have decided to continue with the magnesium.  I reordered both.

I have read about another supplement called Vinpocetine.  I heard that it helps with blood flow and may help tinnitus.  I am not sure I want to start taking this supplement as the reviews I have read have been mixed.  Some people seem to say that it helped them feel better in general but had side effects like headaches or dizziness.  Also, the mechanism by which vinpocetine works is unclear.  If I decide to try this out, I am going to start with 5 mg.  I order this from Swanson Vitamins so returning it should not be a problem.

Last week, one afternoon I noticed the ringing changed for a moment.  There was an added frequency and pattern.   Makes me wonder if something is going on.

So right now, my supplements that I am taking are as follows:

  • 3 g taurine
  • 400 mg  chelated magnesium – I increased this from 133 mg to 400 mg
  • 600 mg turmeric with black pepper
  • 4000 iu vitamin D – I used to take 2000 mg but decided to increase it.  I may go back to 2000 iu with the summer approaching
  • 1200 mg fish oil
  • Probiotic

You should consult your medical doctor if you are thinking about taking any supplements.  Do your research to understand how they may interact with other medications and your condition.

Some of the items I am taking for other reasons like the probiotic but I am listing it here because you never know how it may help.  The gut is an amazing thing!

I also started to follow the Slow Carb Diet (SCA) written and spoken about by Tim Ferriss.  For me, it has meant not eating any bread, pasta, white flour or flour in general, drinking only water and not sugary drinks, not eating fruit and eating a lot more protein and veggies.  I am not doing this for my tinnitus, but again you never know the unintended benefits.  I have been on this method for about 10 days. More to come on this.

I will cure myself!  Thanks for reading.

Tinnitus update

I am continuing to take supplements, however, as I run out I am not replenishing all of them. I recently ran out of Lecithin so here is what I continue to take:

Taurine 3-4 g per day
Tumeric with black pepper
Fish oil. Omega 3
Magnesium
Vitamin D
Probiotic

I have stopped taking Lecithin. Ran out two days ago
ALA
Acetyl L Carnitine
Multivitamin for vitamin B. I stopped this because my GI system began to hurt so I stopped taking the multivitamin which were a little old and the magnesium which I since continued.

Observation – I was out of town for about 3 days and did not take anything except my probiotic. When I got home and took a nap, when I awoke the ringing seemed louder.

I cannot assess if these supplements are helping my tinnitus. I took most of them for a good period of time of about 60 days. I am thinking they may be helping me in other ways.

Right now, I think that supplements will not cure my tinnitus. I think they may be helping, but I think the mechanism causing my tinnitus is not related to the direct mechanism these supplements are acting along.

I watched the Ted video,I discussed in an earlier post. I then watched a couple programs about brain plasticity. I think this is the path I need to focus on.

I am not planning to stop taking my supplements as many reportedly have other benefits and may be helping reduce the magnitude of the ringing I hear. However, I will focus on exercises to reprogram my brain.

I will cure myself.

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Can I hear more than I realize? I can hear the bobbleheads.

This morning as I sat in the dining room reading a book my daughter peeked her head around the doorway.  She said to me, “Can you hear the bobbleheads making noise?”  We have a collection of solar powered bobbleheads that shake their hips and heads by the dining room window.  I looked up at her and then at the bobbleheads.  I said, “No, I cannot hear them.  Are they making noise?”  I listened but not could not hear them.  All I could hear was the ringing in my brain.

I then stopped for a moment, focused and listened.  In a few seconds, I heard the low pitched back and forth noise of the bobbleheads.  I could hear it all the time.

This is significant to me because it makes me think that my awareness of sounds is being impacted by the tinnitus.  Because the tinnitus is so pervasive, I wonder if my brain or myself has just given up on trying to hear some things.  I am trying to come up with an analogy so let me just brainstorm here.

It is like:

  • Learned helplessness
  • The sirens are frequent so you block out the background noise when you live in the city.
  • Someone constantly saying something is impossible so you stop thinking it is remotely possible
  • Something is always up close in your field of view so you stop focusing on the surrounding landscape and miss the beauty far in the horizon.

There is some literature about our ability to handle stress or complex situations.  We wear out in our ability to deal with stress.  To help manage and optimize our lives, we simplify and routinize other parts of our lives or senses.  For example, even though we see a lot when we look around, we only focus on a few things.  We in a sense block out other things that we see but do not fully acknowledge.   I am not using the right terms here but I wanted to share this the best I can.  So, with tinnitus, I am constantly faced with this ringing noise that I am sure is a stress on me whether I acknowledge it or not.  With this constant stress, I think my brain starts to simplify and block out some other things that I actually am hearing.

This realization which I think I have had before is important – not only for my tinnitus journey, but also for our lives in general.  What are we missing or blind and deaf to because of all the noise and lights we have to deal with everyday of our lives.  What feelings are we unaware of because of the overload?

I can hear the boobleheads.

I will cure myself.

 

Josef Rauschecker TED presentation on Tinnitus

I highly recommend watching this Ted Presentation by Dr. Josef Rauschecker about tinnitus.  In the video, he discusses the mechanism that causes the ringing those who experience tinnitus hear in our brains. He discusses the relationship to blind spots and other examples that our bodies are able to compensate for and how this relates to the mechanism behind tinnitus.  For me, it is another clue in my journey to cure myself.  Dr. Rauschecker’s explanations are clear and well explained.  He also gives us hope that a cure is within reach.  Another point he makes is the relationship between stress and our ability of our bodies to block out the phantom noises.

Personally, it is giving me more perspectives on my own journey. I hope that you watch this video and I would like to thank Dr. Rauschecker, his colleagues and all those who are bringing us a cure.

I will cure myself.